Fibronaut At Home

I Love My Library!

on September 5, 2012

I know the title doesn’t seem like it should have anything to do with fibromyalgia, but my library has been so instrumental on my path to wellness.  I’m not well yet, but I’m learning something new every day about fibromyalgia.  I can’t tell you how many books I’ve checked out on the subject and I just requested more.  The High Plains Library District in Weld County, Colorado is so wonderful.  Even if a book I want isn’t at the library in my town, I can request it online or have a librarian request it for me.  They make it so easy.  If there is a book I want to read and the High Plains Library District doesn’t have it, I let them know and they get it.  They also offer CDs,audio-books and e-books, which are especially nice for those with fibromyalgia because it is so much easier to hold an e-reader or listen on a laptop than to have to hold a book, hold the book open and turn the pages.  I actually gave up one of my favorite activities, reading, for a while because when I tried to read my hands would shake, I’d get painful spasms and I couldn’t concentrate on what I was reading because of this.  I now have a Kindle and I have perfected the art of book-propping to avoid hand and arm strain.

Here are some of the books I am looking forward to reading:

  • Fibromyalgia: simple relief through movement by Stacie L. Bigelow, M. A. (ISBN: 0471348023)
  • The Fibromyalgia Relief Book: 213 ideas for improving your quality of life by Miryam Ehrlich Williamson (ISBN: 0802775535
  • Figuring Out Fibromyalgia: current science and the most effective treatments by Ginerva Liptan, M.D. (ISBN:9780982833971)
  • From fatigued to fantastic!: a clinically proven program to regain vibrant health and overcome chronic fatigue and fibromyalgia by Jacob Teitelbaum, M.D. (ISBN: 9781583332894)
  • Reversing fibromyalgia: the whole-health approach to overcoming fibromyalgia through nutrition, exercise, supplements and other lifestyle factors by Joe M. Elrod (ISBN:158054326X)
  • What your doctor may not tell you about fibromyalgia: the revolutionary treatment that can reverse the disease by R. Paul St. Armand, M.D. and Claudia Craig Marek

 

I know that I’ve checked out some of these before but it never hurts to give something a second glance, just to see if you missed something or if you have an “Ah-ha!” moment.  Right now I’m reading The Fibromyalgia Handbook: a 7-step program to halt and even reverse fibromyalgia by Harris H. McIlwain, M.D. and Debra Fulghum Bruce, M.S.  Step 1 is “Start with medical treatment”.  Um.  Duh!  I’m pretty sure that upon waking with the kinds of aches, pains and fatigue that go along with fibromyalgia, the first place most of us headed was the doctor.  Included in this chapter are various methods of pain-relief like moist heat (Twice a day? How about all day?), NSAIDs, anti-depressants, muscle relaxers and every other drug that could possibly be available for fibromyalgia, as well as supplements (magnesium, malic acid, melatonin).  Magnet therapy and Human Growth Hormone, are mentioned, as well as creams, liniments, lotions, injections, TENS and everything else you could think of or have been told MIGHT help.

I haven’t read beyond this chapter for good reason.  How could a person read this and not be more confused than they were before?  Every type of possible pain relief method is mentioned and they could all work or they might not.  It’s up to the reader to figure this out?  Really?  First you have to find a doctor who is willing to try some of these things.  My pain specialist got me off of the narcotics, which I am very thankful for, but has no other suggestion for me beside yoga.  Really!  I just do yoga every day and I’m all better?  I did yoga yesterday, meditated for a while, but still had little to no energy, still had pain and still couldn’t sleep last night.  Maybe today I’ll try my Leela by Deepak Chopra on the XBOX Kinect.  Life with fibromyalgia really is all trial and error.  Unfortunately, the price for my errors often leaves not only me suffering but my family as well.  Mommy is grumpy/asleep/crying, the kids have to find their own dinner and the hubby gets no loving in any shape or form.  I think the Fibro Response and thyroid are helping with some of the sensitivity and some of the pain but I really need something to give my energy a boost.  Zoning out all morning and falling asleep after the kids get home is okay, if that’s the way it has to be, but there are so many things I could be doing if only I had the energy.  I could even consider going back to work if I didn’t wake up feeling like a Mack truck hit me every morning.  I think I need to re-read my goals/positivity post (It’s a lovely new day).

The point of this post was to say that libraries are great resources but I think I came around to say that you should try to educate yourself but do what works for you because with fibromyalgia, anything goes.  Unless it doesn’t go.  Then quit doing it because (obviously) everyone is different and even the doctor’s aren’t sure what works and what doesn’t.  And don’t get down on yourself if you have to take a nap during the day or you don’t have enough energy to do the dishes/laundry or yoga that you had planned to get done.  Do your best, even if your best is sitting on the couch and playing games on Facebook.  Tomorrow you’ll start taking names and kicking ass.  Today just may be your down day.

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One response to “I Love My Library!

  1. painfighter says:

    I haven’t read books about fibromyalgia but I do a ton of reading online and like reading articles about new scientific studies/findings about fibro and chronic pain. I am not a magazine person, but I subscribe to Pain Pathways. It’s great. It’s all about chronic pain. It has really good information, personal stories of those living with what we live through, new therapy options, etc. It helps motivate me to keep going. You might check it out. A two year subscription was really cheap as they only publish quarterly. http://www.painpathways.org/

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