Fibronaut At Home

Stay Strong Colorado

Stay Strong Colorado

I was born here. I’ve lived here my entire life. It is so sad to see all the destruction, the lives lost and people’s homes and livelihood’s gone. My family and I are safe and are so thankful that we don’t have any flooding in our immediate area, but there is flooding to the South, North, East and West of us. Prayers for Colorado.

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Gluten Intolerance

I haven’t actually been diagnosed, except by my very wonderful acupuncturist, but having been off gluten for a month, I can report that I do feel much better.  If I needed any confirmation, I have it today.  We had dinner at Red Lobster last night and having been shut-down on a gluten-free menu so many times before, I didn’t even ask for it.  I had the maple glazed chicken with wild rice pilaf and broccoli.  This morning, I woke up hurting much worse than usual.  I called Red Lobster, had it confirmed that they do use wheat flour in the glaze but that they have a gluten-free menu that you can ask for.  So, if you’re thinking of going gluten-free, be sure to ask, even if the majority of people look at you like you’re speaking another language.

In the meds front, I’m trying to get off of the suboxone that I’ve been taking to help with the withdrawals and pain associated with addiction to opiates.  Not that I’m an addict.  I haven’t had one craving for my old pain pills, which didn’t help my pain at all.  Thanks to the neurologist that I used to see, as I think I’ve mentioned before, I was on narcotics for no good reason.  He was a jerk, who didn’t believe I was sick, so I’m glad I’m not seeing him anymore.  When I went to my new pain doctor, he explained that someone with fibromyalgia should never be put on narcotics.

My disability company called me yesterday to inform me that they would no longer be paying my claim.  No doctor filled out the work restrictions and there isn’t sufficient evidence to support my claim of fibromyalgia.  First of all, I didn’t diagnose myself, the a fore mentioned douche-bag, I mean, neurologist said that’s what I had.  Second of all, I called my current doctor, I’ll call him Dr. Wonderful, because the combo of him and his nursing staff are the bomb, and they never received the fax requesting work restrictions.  The disability company goes by the national norm for my job, which they consider a sedentary position and they think I can do that.  They don’t look at my specific employer and what they expect of me, which was to do the job of three or four people.  They look at what a loan processor is, probably at a big company, where everyone sits in their cubicle all day.  That was nowhere near what was expected of me, not to mention that doing the job of three people gives you the stress load of three people.

They also called me on a Friday afternoon, to tell me that they’d be mailing me a letter and I could see it then.  I was seeing red at this point, but did call back to ask them to fax it to me.  Reading the letter made me even more mad, especially the comments that the douche-bag, I mean neurologist, made about me walking with my young child.  Not carrying her.  Holding her hand and walking with her.  The ass also said that I always seemed better after the appointments and never seemed fatigued.  Could it be that I was more warmed up and able to move better after having been up and around?  How could he tell me that I needed to exercise and walking was a good exercise and then damn me by saying I was walking better at the end of the appointment?  I do have fatigue!  Every day!  Is he with me 24/7 to see that?  I guess I should’ve cancelled my appointments on my good days and only gone in on my horrible ones!

Lastly, I’m dealing with the shock of the mass-shooting at a theater that I used to go to, in my home-town of Aurora, Colorado.  It is 10 minutes from my Mom’s house and 2 minutes from where I used to work in high school.  The guy lived 5 minutes from my Mom’s house.  I just can’t believe that this would happen.  He killed kids.  My father-in-law wants to take my kids to see Batman today and I want them to go and have fun, but I’m scared.  What if there are copy-cats?  I’ll go see Ice Age with my three-year-old while my hubby and father-in-law take the older kids to Batman, but I’ll be worrying about them the entire time.  I really hope that people don’t judge Aurora or Colorado badly, from this one incident.  I have to point out that this person was from California and was only in Colorado going to college.  I would like anyone reading this to say a prayer for the victims and their families.  Hug your kiddos and loved ones a little tighter, even if it hurts.

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Back(ache) in Colorado

Since I last posted, I went on a family outing to Palo Duro Canyon and then helped my youngest be a shark in the pool.  Those two things combined produced precious memories and have left me with an unbearable back ache since Sunday.  I spent my last day in Texas mostly sleeping and hanging out in my Mother-in-Law’s bed because I was in so much pain in so many places.  I read maybe one chapter on my Kindle because I kept falling asleep at the end of one page, waking up and then reading the same page.  I’d get to the bottom and realize I’d already read that part.  The pool was cold and by the time I was able to drag my baby out of the pool, I could barely stand my knees were so weak.  Whether that was from all the Jaws action or from the mini-hike (I probably did a quarter of what all the other adults did) at the canyon, I’m not sure.  I enjoyed watching everyone else having fun but I miss joining in.  It was only two years ago that I would be walking as far down the creek as I could with everybody else.  I’ve never enjoyed the caving,  but at least I’d go a little ways.  My hubby and I used to take turns playing with the baby in the kiddy pool.  Now it’s just me in the shallow end because I don’t have the energy to swim one lap and my throws of the balls are worse than my three-year-old’s.

It is now Wednesday and we are home and after posting pics of the vacay to Facebook and now typing this, my left arm wants nothing more than to be limp at my side for the rest of the day.  I am alternating my heating pad between my back and my knees.  I had enough energy yesterday to make my kids and their two cousins re-heated mac & cheese and weenies but my feet and ankles were so swollen from the 9 1/2 hours in the car on the drive from my Mother-in-Law’s house to my Mom’s house that even that took all of the energy and concentration that I didn’t have.  It’s always amazing to me how I can be hurting so bad and yet my brain doesn’t tell me to just sit down already.  I’m still trying to cook like a normal person.  I burnt my fingers three times because I kept forgetting to use the hot pads on the hot pot.  Duh!  Then we had to drive home which is another hour and a half in the car.  My hips were screaming at me by the time we got home and now I’m supposed to make ramen for the kids but all the suitcases are in front of the stove.  Thank goodness it is summer vacation for the kids so I have a ten-year-old and an eight-year-old for all my heavy lifting.  Sharp pains in my arms and hips and spasming fingers are ending this post.  Here’s to ramen noodles for lunch and whining kids doing all the chores I can’t.

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