Fibronaut At Home

Advice Please

I’m still waiting to hear on my disability appeal.  According to the disability company, they have reached out to my doctor and he hasn’t responded and according to my doctor’s office, they haven’t heard anything.  I just don’t know what to do.  We have no money and going to this doctor is already problematic because he is so far away.  My hubby drives me to my Mom the night before appointment, which is 3 hours round-trip and then my Mom takes me to my appointment and drives me home with is another 3 hours round-trip for her.  I just don’t know if it is worth it to continue seeing this doctor.  What to do?  I’m pretty close to just finding another doctor but with the appeal process being an ongoing thing I don’t want to chance them denying me again while I’m in between appointments.  That is what started this whole mess.  Also, the doctor I’m seeing now charges $50.00 any time he has to fill out disability paperwork, which is not in our budget at all and would be a monthly expense if I was re-approved.  The thing I really like about him is that he thinks outside-the-box in regards to this illness and has helped me more than any other doctor I’ve seen.  Ugh.  I hate this.

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Freaking out

In the mail today was a letter from my Long-Term Disability Company stating that in order for me to continue receiving benefits, they needed a statement from a doctor stating what I can and cannot do.  I’m freaking out for no reason because I went to my Primary Care Physician last week to resolve this issue.  So I shouldn’t be freaking out.  My doctor probably faxed the form as the company was mailing me this letter.  But I cannot help it.  Until this issue is resolved, my stomach is going to be one giant knot.  Combined with the wet weather coming, this added stress is just going to make me hurt more.  Stupid neck spasms are already starting.

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New Doctor and Old Friends and Family Affairs

I had a very illuminating visit to my new doctor.  He is a pain specialist and told me flat out that narcotics are a no-no when dealing with Fibromyalgia.  Why, then, I wonder, did my neurologist put me on them in the first place when he was the one  who was telling me I probably had Fibromyalgia all along?  I would really like to call him up and give him a piece of my mind.  The narcotics may have been making my pain worse and now I have to go through the process of getting off the narcotics completely when I may be habituated to them.  I hoping this experience is not too painful.  This new doctor was such a breath of fresh air.  I really like his attitude, although he did the old poke and prod at all the good spots we fibromyalgic’s have so I feel pretty sore.  I’ll let you know how the withdrawals go.  They are putting me on something to help me deal with the withdrawals.

In my last post, I talked about the party I had and how much fun it was catching up with oldie but goodie friends.  I actually felt human for a couple hours.  I always get zits when I’m nervous about an upcoming event and I picked a couple on my forehead.  I know this is really gross, but now they’re infected and I’m on antibiotics to clear up the infection, but in the meantime it hurts so bad.  I took so long to go to the doctor because I thought it was just my Fibro making it hurt so bad.  Making it so much better though, is my friend Becki, who is planning on running The Boulder Boulder and The Tough Mudder in my honor.  I wish I lived closer so I could become better reacquainted with my old friends because they really are awesome people.

In family news, I just found out that a younger cousin of mine has been diagnosed with Fibromyalgia.  Sad to hear.  My Dad wants to make it into some kind of government-food industry conspiracy theory, but I’m pretty sure my Mom has Fibromyalgia too.  We’re off on a walk to the library as part of my new exercise plan called “walk somewhere every day”.  Yes.  I did just make that up.

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