Fibronaut At Home

A Question

I have a question for everyone, that I hope you’ll take the time to help me answer.  I have some people friended on my Facebook page from my life pre-fibromyalgia.  It isn’t that I don’t like them, it is just that it sometimes makes me so sad when I see their posts.  They may check my Facebook page from time to time, and I obviously check in with them.  The difference is I always make an effort to like or comment their posts, and the only time I “hear” from them is when their posts pop up in my news feed or I visit their page.  Since their posts have such an effect on me, do you think I should unfriend them?  I just don’t know.  I know that I don’t like it when I go to message someone that I don’t see very often has unfriended me, so I don’t really wan’t to give someone those bad vibes.  I would really appreciate your advice.


New Doctor and Old Friends and Family Affairs

I had a very illuminating visit to my new doctor.  He is a pain specialist and told me flat out that narcotics are a no-no when dealing with Fibromyalgia.  Why, then, I wonder, did my neurologist put me on them in the first place when he was the one  who was telling me I probably had Fibromyalgia all along?  I would really like to call him up and give him a piece of my mind.  The narcotics may have been making my pain worse and now I have to go through the process of getting off the narcotics completely when I may be habituated to them.  I hoping this experience is not too painful.  This new doctor was such a breath of fresh air.  I really like his attitude, although he did the old poke and prod at all the good spots we fibromyalgic’s have so I feel pretty sore.  I’ll let you know how the withdrawals go.  They are putting me on something to help me deal with the withdrawals.

In my last post, I talked about the party I had and how much fun it was catching up with oldie but goodie friends.  I actually felt human for a couple hours.  I always get zits when I’m nervous about an upcoming event and I picked a couple on my forehead.  I know this is really gross, but now they’re infected and I’m on antibiotics to clear up the infection, but in the meantime it hurts so bad.  I took so long to go to the doctor because I thought it was just my Fibro making it hurt so bad.  Making it so much better though, is my friend Becki, who is planning on running The Boulder Boulder and The Tough Mudder in my honor.  I wish I lived closer so I could become better reacquainted with my old friends because they really are awesome people.

In family news, I just found out that a younger cousin of mine has been diagnosed with Fibromyalgia.  Sad to hear.  My Dad wants to make it into some kind of government-food industry conspiracy theory, but I’m pretty sure my Mom has Fibromyalgia too.  We’re off on a walk to the library as part of my new exercise plan called “walk somewhere every day”.  Yes.  I did just make that up.


You Gotta Have Friends!

What a wonderful day I had yesterday!  Good friends, who I’ve missed so much, camaraderie, and support.  I had a Celebrating Home Party and if I forgot to invite you, I’m so sorry, and if I did invite you and you couldn’t make it, I’m sorry for that too.  Also, if you don’t know what that is you should Google it.  They have a very nice selection of items for your home and garden.  I’d be happy to recommend my Sales Consultant as well (I think that’s what they’re called).  It was so nice to just sit and chat with people who I haven’t seen in many months or many years.  And while I really have thought of myself as socially backward for years, I realized after yesterday that it isn’t so much me being nervous or shy but me imagining things that aren’t there.  Or maybe it was just the total acceptance from the ladies I had around me yesterday that gave me confidence.  There is something so refreshing about being around people who you know will tell you if your fly is open, or if you have a boog hanging out.  (Not that my fly was down, although I had jury-rigged my capris so they wouldn’t be so tight around my waist.  I was also mercifully boog-free)  So thank you for that ladies.  I may not have a lot of friends but I have awesome ones.  Quality, not quantity, yes?  I thought of taking a picture to commemorate the moment too late, after everyone had left.  That was my fibro kicking in.  I realized another important thing:  I can just be sometimes.  Not everyone is judging me and even if they are, that is something they have to deal with.  I don’t have to constantly grimace in pain, even though I feel pain.  I can try to smile once in a while.  I don’t have to succumb to my fatigue all the time.  I don’t have to constantly think about my fibro or mention it to others.  I can do other things.  This may seem like an obvious thing, but to me it was profound.  Fibromyalgia is something that’s going to be with me for the rest of my life.  I’m going to have to live with it.  Key word LIVE!



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