Fibronaut At Home

Flare with a capital F

Tuesday:  Just in time for the holidays and for my little girl’s ninth Birthday, I am having the flare from hell.  It started with me going off my Lyrica, my three-year-old being sick and a friend passing away so I’m not sure which of these things are to blame or if it is the combination of the three.  I’ve slowly stepped down from the Lyrica so it is not like I just went cold turkey.  Thanks to my hubby and kids for keeping up on the dishes for me.  I just tried to load the dishwasher and didn’t even get halfway done.  I can barely raise my arms so hopefully a little rest will allow me to finish.  Good thing the kids are off after today for Thanksgiving Break or else laundry would be piling up even higher than it is.

Wednesday:  I am on day two of this post because my arms wouldn’t allow me to type anything further.  My Katie helped me “finish” what I could of the dishes yesterday and today the kids helped me start laundry.  I am so thankful that I got Katie’s birthday presents done when I did, before my arms went floppy and the pain doubled.  After 9 days of being in a flare I am hoping that this one is almost done.  I was going to do some meditation-sewing today but it is really hard to focus on anything else when I am this tired and when my house is in tornado-mode.  My arms are done with typing.  In case I don’t get to post again for Thanksgiving, I hope everyone has a wonderful day with their family and friends.

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Grumpy

I have to apologize to my husband and kids for my behavior this morning.  I was grumpy with a capital G!  I didn’t mean to be and I really tried to speak slowly so my children would understand the directions I was giving them and I really tried not to bite my hubby’s head off.  It’s not his fault (well, it sort of is) that our appointment this morning was at 11 am.  Way too early for me!  It’s not his fault that I hurt so bad or that I’m so tired (well, it sort of is, he wouldn’t let me sleep!).  It is not my kids fault that they have selective hearing and if they are looking at the TV or playing a game they have no hearing.  I was feeling weak, tired, hurting everywhere and was trying not to focus on that.  So, I’m sorry I yelled at my little angels and gave them dirty looks when they weren’t opening the van doors fast enough while I tried not to drop the littlest of my angels.  Even typing this is too much.  Thankfully the appointment was cancelled before I had to make the drive into town.  I was making it up to my kids by letting them play XBOX.  They started to fight, I made them turn off the TV and I’m pretty sure I hear the beginnings of a water fight in the bathroom.

If I needed any proof that working isn’t an option I got it from my frenzy of research and writing and phone calls I did to combat my disability company’s actions.  I hurt so bad yesterday, then we got a rainstorm the night before last and last night.  Pain times a thousand.  I just moved my heating pad from one area to another.  Right now I have pain in my legs, ankles and in my hands.  I had really bad blurry vision yesterday.  So bad that it looked like my little girl had two sets of eyes.  My hubby had to take off of work to drive me to acupuncture and I feel like it’s coming on again.  Anyone ever had that happen?  My husbands Aunt has Fibro and when she started having blurry vision, she had to go off of Lyrica.  There’s lots of clouds, so that might explain part of why I hurt so bad.  I don’t even have to check the forecast any more.  Maybe I could get a job as a carny.  I’ll guess the weather from the inside of a padded room with no windows.  That sounds more like the funny farm.  I’m blathering now.  Have a great day!

5 Comments »

Stress Relief

I have just experienced the most wonderful stress relief all because I was able to make an appointment for my doctor for tomorrow!!!  I have a bad habit of not noticing when I’m about to run out of medication.  I’ve been meaning to check how much Lyrica I have and kept forgetting but suddenly realized how light the pill bottle felt on Saturday.  I, thankfully, get my Lyria free from Pfizer through their Connections to Care program so all I have to do is get my doctor to fax my prescription in and I’ll have my medication, hopefully before I run out.  If you have never run low on Lyrica and attempted to make 3 days worth last for five then you are lucky.  The last time this happened I felt like I was on fire, I couldn’t move and then I had the scariest dream I’ve ever had.  I just remember the devil talking to me and then I woke up screaming at the top of my lungs.  Not fun.  I was just starting to write a post about how stressed I was and then I got a call from my doctor’s office to schedule an appointment and they had a time open tomorrow.  That is true stress relief.  If it wasn’t for fibro-fog I wouldn’t have all this needless stress, but I wouldn’t have this enormous relief after I get things worked out.  I would type more, but I feel like I’m rambling and my neck is starting to hurt.  Out!  Damn spasms!  Out!

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